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Patient and Family-Centered Care and Research Partnerships during COVID-19 Webinar

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This webinar will cover the findings of the Recovering Patients Informing Research about COVID-19 (REPAIR COVID-19) project. The project engaged a diverse group of adults who have had COVID-19 and their caregivers in a series of conversations to learn about their experiences, questions and concerns; their recommendations regarding how to improve care for patients with COVID-19; and what they think are important topics for COVID-19 research studies.

The project findings will help inform health care professionals, researchers and leaders on how to better address the needs of patients with COVID-19 and improve response to pandemics. The constraints of the current pandemic have made it very challenging for researchers to engage patients and family members as partners or advisers on COVID-19 research efforts. This project will help bring the voices of patients and families to researchers.


Webinar Topics:

  • Patients’ and families’ questions and concerns about COVID-19; experience with COVID-19 diagnosis, treatment and recovery

  • Patient and family ideas on how to improve care for patients with COVID-19

  • Overview of questions that patients and family members would like research studies to help answer

  • Lessons learned about engagement using online groups


Who Should Attend?

Researchers, health care professionals, health care and community leaders, patient advocates, students

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Contact:

Armstrong Institute for Patient Safety and Quality
750 E Pratt St, 15th Floor
Baltimore, MD 21202
 

Workshops and Conferences

​410-637-7170 or AILearning@jhmi.edu